Technologies of Hope

Having an immediate family member with cancer means that you look for hope everywhere.  Those who’ve brushed up against this family of diseases hopefully know that support groups abound.  Given my schedule, I don’t get out much on workday evenings, but we recently attended a survivors’ event hosted by the Andy Derr Foundation (donations accepted).  Two prominent local oncologists spoke and their tone was hopeful—always hopeful.  What really struck me was how much cancer treatment has progressed even just in the last five years.  The “cure for cancer” does not yet exist, but many technologies of hope do.  I sat there awestruck.  There are women and men spending their lives working to treat what used to be nearly always a fatal condition.  It was inspiring.

On the way home I was musing about how much we could advance in human health care if we had the budget of the military.  A vlogger we follow, John Green, happens to be a bestselling fiction author.  He is now writing a nonfiction book on tuberculosis.  This disease, for the most part, is completely treatable.  His efforts have led to lowering the cost of supplies to treat it for cash-poor countries.  I suspect he knows the same thing.  Our government decides which priorities it will fund.  Our fear—let’s be honest about this—funnels billions and billions to military budgets.  (And you wonder why I watch horror movies?)   I’m a dreamer, I confess.  But what if, world-wide, we put our money into medical budgets?  Can you even begin to imagine where we’d be by now?

I know most medical personnel are paid quite well.  My family member’s cancer medication costs more than she makes in a year, per single dose.  The technologies of hope those doctors were describing would be phenomenally expensive.  If only as a nation we had trillions of dollars at our disposal.  If only.  None of this, of course, should overshadow the tremendous work being done by nonprofits like the Andy Derr Foundation.  Channeling hundreds of thousands of dollars into research and treatment, they are making a difference.  Those beautiful survivors there that night are proof of the lives they’re helping save.  We have the ability to do amazing things.  If we support, and love one another, we can overcome a scourge that many, many families will experience, if they haven’t already.  Good work is being done.  And the good will behind it is cause for great hope.


End the Stigma

I’ve been a lifelong fan of Edgar Allan Poe.  I bought books about him (and by him) from a young age, fascinated by a person who expressed himself so beautifully in the face of trauma.  Of  a different era, and mindset, was Rod Serling, creator of The Twilight Zone.  Another childhood hero of whom I made the assumption of some trauma.  One thing interesting about both of these influential writers is that relatives have written about them claiming that they weren’t as haunted as they seemed.  I wonder, however, if they write such things because we still, we are still stigmatizing trauma.  We’re great victim-blamers.  Perhaps it’s because we want to distance ourselves from the scary forces at play.  We fear that unhappy master, whom, in Poe’s words, “Unmerciful disaster followed fast and followed faster.”  We don’t want to attract such things to ourselves.

Reflecting on my father recently—I didn’t know him well at all—I was thinking about his experience in the Korean War.  I don’t know what happened to him there and I never had the opportunity to ask him about it.  But I do believe that, like Rod Serling, he may have been traumatized by combat.  War leaves trauma in its wake.  Few, I suspect, come out of such situations without deep scars that haunt them the remainder of their lives.  And still we fight.  I knew, already at a young age, that I could never be a soldier.  This despite growing up with G. I. Joe.  Some of us spend our lives trying not to harm others.  Trauma follows on from that since the world has its share of unmerciful disasters.

There are those who claim Poe wasn’t the experiencer of doom and gloom about which he wrote so eloquently.  He lost those close to him to disease.  Even now there are many stigmatized diseases.  That’s one of the reasons employers are insistent that conditions suffered by employees not be revealed.  Our whole medical privacy mindset plays into the stigmatizing those who face illness.  Tuberculosis was only one of many widespread diseases during Poe’s life, and it’s still widespread in parts of the world because companies like Johnson & Johnson and Danaher price gouge the well-understood cures to maximize profits.  And we blame the victims.  I return to Poe at intervals in my life.  I also watch episodes of The Twilight Zone.  And I think of my father.  There is trauma in the world, and some of it, at least, is preventable.  We must stop blaming the victims.